March 2012 E-Newsletter

Visit our site March 2012
CALL TO ACTION!

Governor Corbett Proposes Elimination of Epilepsy Funding in Budget

On Tuesday, February 7, Governor Tom Corbett presented his state budget proposal to the General Assembly calling for the elimination of 33 state budget line items. Included in this is the Department of Health line item for epilepsy support services in Pennsylvania. The current state budget originally included $390,000 in state funding and $150,000 in federal funds for epilepsy programs across the state. In early January, an administrative order reduced the state funding to $370,000.

These appropriation dollars allow both the Epilepsy Foundation Eastern Pennsylvania (EFEPA) and the Epilepsy Foundation Western/Central Pennsylvania the ability to support seven offices across Pennsylvania.

The EFEPA urges all epilepsy supporters to contact members of the General Assembly, particularly those on the House & Senate Appropriations Committee to urge them to maintain the line items for epilepsy services and to continue funding for epilepsy programs into the 2012-2013 fiscal year. Ask your local representative or senator to let the leadership know how important epilepsy programs are to you and your family.

You can find contact information for your legislator by clicking here.

Save the Date for Upcoming Events, Conferences and Programs
Conferences and Programs

Abington Memorial Hospital – Wednesday, March 14 – 6:30 pm – 8 pm – Mood & Memory

Come hear Pat Anasiewicz, RN, MSN, MBA, a Community Health Outreach Nurse from Lansdale Hospital discuss the effects of epilepsy/seizure disorder on your mood and memory. For questions or to register, contact Sue Livingston at slivingston@efepa.org.

Park City Mall – Lancaster – Tuesday, April 17 – 6 pm – 7 pm – Young Adult Epilepsy Meeting

This special hour-long meet and greet program, specifically for ages 14-22 will concentrate on group interactions and discussion on age-appropriate topics of interest. The group will meet in the Food Court outside of JC Penney. Refreshments and dessert will be provided. To RSVP, contact Kerri Michnya at kmichnya@efepa.org.

Lehigh Valley Health Network – Saturday, April 28 – 8 am – 1 pm – Lehigh Valley Epilepsy Education & Information Exchange

Epilepsy experts from the Lehigh Valley area and Philadelphia discuss a range of topics including, the basics of epilepsy and the cognitive effects of epilepsy. There will be two tracks, one concentrating on children and epilepsy and the other specifically for adults and epilepsy. For more information or to register, please visit www.lehighvalley.kintera.org.

Lancaster Farm & Home Center – Wednesday, May 16 – 6 pm – 8 pm – Epilepsy & Research: A Focus on the Future

The EFEPA is pleased to announce their fourth annual conference in the Lancaster area. This evening conference welcomes Dr. Brian Litt of the University of Pennsylvania School of Medicine and Penn Engineering Program, who will provide the most current information about epilepsy/seizure disorder, research and future treatment options for people affected by seizures. For more information or to register, visit www.lancastercounty.kintera.org.
Events

Saturday, May 12 – 5:30 pm – Phillies Fundraiser -Citizens Bank Park

The Philadelphia – Main Line Alumnae Club of Pi Beta Phi is holding their annual Phillies game to benefit Camp Achieve. Join them on May 12th as they watch the Phillies take on the San Diego Padres. There will be a pre-game tailgate at 5:30 and the game begins at 7:05 pm. Tickets are $80 per person and include the pre-game tailgate. For more information and to purchase tickets, please contact Madeline Bergman at development@efepa.org.

Saturday, June 16- 9:00 am – Summer Stroll 2012 – Forbidden Drive

Come join over 700 walkers as they stroll along Forbidden Drive, raising money and awareness of epilepsy. One of the Foundation’s largest events, Summer Stroll features a 5 mile walk in beautiful Fairmont Park and a picnic filled with food, games and fun. It is the perfect time for you to come and meet other members of the EFEPA family and network. For more information and to register visit: www.strollforepilepsypa.kintera.org.

Sunday, August 19 – August 24th – Camp Achieve 2012  – Camp Green Lane

Children and Teens, ages 8-17 with a primary diagnosis of epilepsy are invited to apply to attend Camp Achieve, a week-long overnight camp in Green Lane, PA. Camp Achieve, staffed with nurses and neurologists, is the perfect place for your child or teen to swim, canoe and participate in fun activities while being educated and meeting others with a similar diagnosis. Please note that applications will be mailed out to all previous campers, you do not need to contact the EFEPA. For more information, contact efepa@efepa.org.

EFEPA “Lets the Good Times Roll” at Mardi Gras Gala
Osberg Family and Barbara Beck, CRNP

The EFEPA brought New Orleans’ most famous celebration to Philadelphia with our 5th Annual Mardi Gras Gala, held on Friday, February 10, 2012. We had over 400 guests join us to celebrate the coronation of 2012 Mardi Gras King, Greg Osberg. The night also served as the premier of our educational awareness video, “Faces of Epilepsy.” Dan Dougherty, a Foundation volunteer, played a pivotal role in the evening by introducing the video and speaking about how the EFEPA has played a part in his life. Dan said, “As a person with epilepsy for 30 years, my life has had many struggles, including not being able to drive since my seizures are uncontrolled. I have been encouraged by the Foundation to be an advocate and lift the mask of epilepsy to educate the public.”

Mardi Gras Party People

In addition to the video, EFEPA honored two volunteers who have worked decades to further our mission. Jeanne LeBuhn was awarded the Charley and Peggy Roach Founders Award for her 20 years of service. CHOP nurse practitioner and Camp Achieve nurse, Barbara Beck, CRNP was given the Eric Burton Osberg Award for being a medical professional dedicated to both the medical and non-medical needs of her patients.

Besides being a night of revelry, the Foundation netted over $70,000, our highest total to date! This could not have happened without the efforts of our sponsors, Mardi Gras Kings, both past and present, and all of their supporters. To view pictures from the Gala, please visit www.jonathanmeter.smugmug.com.

Support Group Information
Berks CountyNEW

Location: Reading Hospital & Medical Center

First Meeting: April 12 (meetings start at 6:30 pm)

Bucks County

Location: St. Mary Medical Center

Upcoming Dates: April 5, May 3 (meetings start at 6:30 pm)

Delaware County

Location: Riddle Hospital

Upcoming Dates: March 21, April 18(meetings start at 6:30 pm)

Hazelton

Location: General Hospital

Upcoming Dates: March 14, April 11 (meetings start at 7 pm)

Lancaster

Location: Lancaster General Hospital

Upcoming Dates: March 28, April 25(meetings start at 6 pm)

Lehigh Valley

Location: Lehigh Valley Hospital Upcoming Dates: March 8, April 12 (meetings start at 6 pm)

Philadelphia

Location: JFK Community MH/MR Center

Upcoming Dates: March 20, April 17 (meetings start at 6 pm)

Scranton

Location: CMC Professional Bldg.

Upcoming Dates: March 21, April 18 (meetings start at 7 pm)

Wilkes- Barre

Location: John Heinz Institute Upcoming Dates: March 28, April 25 (meetings start at 7 pm)

For more information on Support Groups, please click here.
Talk About It Social
The Talk About It Social began as a camp reunion several years ago, and although it primarily remains a reunion, it has been open to children and teens who show an interest in Camp Achieve. Held on Sunday, January 8, there were over 90 people who attended, including many counselors and medical staff. Almost 30 of the 48 campers that attended Camp Achieve this year attended the Social with their families. A fun time was had by all!
Purple Day – March 26th
Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26th annually, people around the world are invited to wear purple and host events in support of epilepsy awareness. To hear what the EFEPA is doing for Purple Day, check out our Facebook page. Thinking about planning an event for Purple Day? Get more information on our Third Party Events here.
Join EFEPA at the National Walk for Epilepsy
Come support the Epilepsy Foundation Eastern Pennsylvania and the Epilepsy Foundation at this year’s National Walk for Epilepsy on Saturday, March 31st in Washington, DC. The National Walk for Epilepsy is a family oriented, non-competitive walk in our nation’s capital to raise awareness and funds to continue the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. Help us make a difference by registering today.

To register, please visit Epilepsy Foundation’s National Walk for Epilepsy homepage. When you register, make sure to join our team, the Epilepsy Foundation Eastern PA or create your own team, but sign up under the Epilepsy Foundation Eastern PA as the company. By joining the Epilepsy Foundation Eastern PA’s team or company, all fundraised dollars will go directly to support epilepsy programs in our service area. Can’t make it to DC? Join in the fun and fundraise for this important cause, by registering as a “Virtual Walker.” Looking forward to seeing you in Washington, DC!

Epilepsy Foundation Eastern Pennsylvania 919 Walnut Street, Suite 700 Philadelphia, PA 19107

Phone: 215-629-5003  |  Fax: 215-629-4997 |  Email: efepa@efepa.org

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© 2011 Epilepsy Foundation Eastern Pennsylvania

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