Programs & Resources
The EFEPA offers a variety of programs and services to help you seize control of your epilepsy.
The Epilepsy Foundation Eastern Pennsylvania offers a variety of programs and services to help you seize control of your epilepsy. All of our services are designed to help you learn how to cope with the negative consequences sometimes associated with epilepsy or a seizure disorder and are free of charge.
Don’t lose another moment to epilepsy. Check out the programs below to find out how the Epilepsy Foundation Eastern Pennsylvania can help you to achieve the goal of uncompromised living. Learn more about the EFEPA’s programs by watching our Faces of Epilepsy video and stay up to date on events in your area with the calendar below.
Life doesn’t have to be different because you have epilepsy.
Informational Materials and Referral Services
Depending upon your individual needs and circumstances, coping with epilepsy in your everyday life can sometimes mean that you need information, support and help from a variety of local service organizations. Knowing where to find and how to access these local services can vary greatly depending upon where you live and the specific help you need.
Individuals and families can get help finding out about issues such as health insurance, medications, physicians, social security, driving laws, housing, education and employment by contacting the EFEPA staff. Directions and advice can be provided to you and your family about services available in your area. Contact information including telephone numbers, eligibility requirements and web site addresses can be provided to you via our Information and Referral service.
If you need information or a referral or need to talk to someone about the issues that arise in your life while coping with your seizure disorder, contact the EFEPA office in your area.
Click here for a list of our offices. Professional staff is available by telephone or email to answer questions and send appropriate information. Spanish material and translations are available.
Medical, Legal and Mental Health Support Services
The Foundation provides listings of medical facilities, physicians and specialists with epilepsy expertise; legal counseling specializing in disability law, social security disability, educational rights, employment discrimination and more. Support services listings provide referrals in the areas of surgery, mental health and behavioral issues as well as housing agencies.
Further assistance can found in regards to employment and training programs, eligibility for various Medicaid waivers, and pharmaceutical patient assistance programs which may assist in obtaining discounted prices.
We also will supply information about epilepsy to an attorney in order to assist him/her in presenting your claim for related matters such as Social Security benefits or a case concerning employment discrimination.
Adult Resource Services
For adults, information is available that addresses epilepsy related challenges including Social Security, Americans with Disabilities Act, health insurance and prescription assistance, treatment options, and employment discrimination resources. Offerings also include information on PA driving laws and transportation alternatives as well as employer education programs are available.
Workshops and Conferences
The Epilepsy Education & Wellness Fair is held annually and is free of charge and open to the public. Additional workshops are offered throughout the year throughout the 18 counties we serve to meet the needs of individuals affected by epilepsy, their families, nurses, teachers, employers, and others.
Children and Family Services
Individual and family assistance is available. Project School Alert programs are available free of charge to schools, daycare centers and other educational facilities. Independent Educational Program (IEP) assistance is also available.
Support groups offer adults, children, parents, friends, and family members an opportunity to share emotional support while gaining information and knowledge. Speakers on various topics are an important component to all of our support groups.
Community Outreach and Education
Foundation Staff and trained HOPE Mentors are available to conduct educational seminars for your business, school community, social service agency, daycare & senior center, camps and others. These general educational sessions will enhance the participants’ ability to understand epilepsy as a disorder, recognize potential seizure disorders and learn proper safety procedures. Specially-designed programs are available for law enforcement and emergency service personnel. We are available for Health Fairs and Health Expos.
Lending Book & Video Library
Our resource library contains current books, videos and other materials that can be borrowed. The EFEPA’s access to information is also enhanced through a direct computer link to the Epilepsy Foundation of America Resource Library maintained by their national office in Landover, Maryland.
A week-long overnight camp for children and teens (ages 8-17) is hosted in August at a Camp Green Lane in Green Lane, PA. Activities include swimming, wall climbing, arts & crafts, sports, golf, tennis, canoeing and many more. Medical personnel and trained counselors are on-hand to ensure a safe and fun environment. Camp fosters education, peer exchange, camaraderie, and also helps build confidence and self-esteem.
Learn more about Camp Achieve
Special Events and Socialization Groups
All of our events are open to family members including, but not limited to the Summer Stroll, Talk about It Social, educational conferences and our support groups.
Young Adult Services and Youth Council
The Young Adult Leadership Program was started in summer 2010 to build leadership skills for individuals with epilepsy between the ages of 18-28. The program encourages young adults to give back to the epilepsy community with the skills and confidence gained from this program.
The Youth Council is another initiative established to build leadership and teamwork skills for young adults, ages 18-25, who are motivated to make a difference in their communities, and can communicate our message. Members of the Youth Council will be developing new educational programs, advocacy projects, and fundraising events for youth with epilepsy, their peers, and the community surrounding them. Youth Council members may or may not have epilepsy. Learn more about the Youth Council