Take Action Now in Pennsylvania

Take Action
Your Voice is Needed in Pennsylvania!

Protect Access to Medication in Pennsylvania!
Urge your legislator to exclude epilepsy medications from the prescription drug monitoring program

The Pennsylvania legislature is considering a bill, HB 1694, that would expand the state’s Prescription Drug Monitoring Program to include anti-epilepsy drugs (AEDs). Drug monitoring programs have been established in many states, including Pennsylvania, to address prescription drug abuse by closely monitoring and restricting access to medications with abuse potential scheduled drugs. We are concerned that the proposed expansion will limit access to anti-epilepsy drugs (AEDs) and negatively impact the health and privacy of people living with epilepsy in Pennsylvania, by creating potential barriers to physician directed care and an unnecessary administrative burden that may jeopardize patient access and privacy. For people living with epilepsy, access to appropriate and effective epilepsy medications is critical for achieving and maintaining seizure control.

The Epilepsy Foundation and its two Pennsylvania affiliates, Epilepsy Foundation Eastern Pennsylvania and Epilepsy Foundation Western/Central Pennsylvania, strongly believe that including AEDs in the monitoring program will endanger the health and privacy of epilepsy patients and have urged the legislature to amend the bill to exempt AEDs.

Contact your state legislators today and ask them to support an amendment that exempts AEDs from the proposed expansion of the prescription drug monitoring program to preserve and protect access to medications and privacy for individuals living with epilepsy in Pennsylvania. Click here to Take Action and fill out the letter to send the message to your legislators.

To find your current legislator click here.

One Response to “Take Action Now in Pennsylvania”

  1. Bert Christopher Calafell says:

    Good day. Epilepsy funding is needed in the Commonwealth of Pennsylvania and it will be a great disservice to the epilepsy community to withdraw said monies. Those living with epilepsy, including patients, caregivers, spouses, children, parents and community members require the funding of the commonwealth to advance cures, and new treatment options. There are many people suffering from debilitating epilepsy that present treatments do not work. Therefore, more research is most urgently needed. To save and improve the quality of life of those affected by epilepsy. Epilepsy should not be a barrier between an individual attending college or participating in the full fruitfulness of life. However, for many with uncontrolled seizures, this is the daily reality. I had uncontrollable seizures until I underwent epilepsy surgery. Until that time, I had upwards of twenty clusters of seizures a day. Because of advanced research through generous funding from our Commonwealth, I have been given a new life.. Free of seizures and the burden of worry of “When is the next going to happen?” Or “Will one of my seizures result in SUDEP?” I emplore you to consider reinstating funding for epilepsy.

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