EFEPA

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So far efepaorg has created 68 blog entries.
18 May, 2019

Teens Speak Up, Speak Out

By | 2019-05-18T06:11:28-04:00 May 18th, 2019|Advocacy, Legislative|Comments Off on Teens Speak Up, Speak Out

Epilepsy Advocates and Partners Successfully Preserve Medicare's Six Protected Classes Policy Last month, teen advocates and their families from around the country gathered in Washington, DC for the Epilepsy Foundation of America's Teen Speak Up and Public Policy Institute Conference. The Epilepsy Foundation Eastern PA was proud to send Ben Manicke of Bangor, PA and [...]

30 October, 2018

EFEPA Chosen as Eagles Community Red Zone Partner

By | 2018-10-30T15:26:43-04:00 October 30th, 2018|Awareness, Media|Comments Off on EFEPA Chosen as Eagles Community Red Zone Partner

(Philadelphia, PA) October 21, 2018 – The Epilepsy Foundation Eastern PA kicked off November Epilepsy Awareness Month (NEAM) early with an Eagles' Tailgate. Celebrating the EFEPA’s selection as an official Community Red Zone Organization, our purple tent and epilepsy awareness Eagles shirts drew a crowd. Members from across our community came out to enjoy food, [...]

10 August, 2018

Epilepsy Foundation Eastern Pennsylvania to Continue Affiliation with the Epilepsy Foundation of America

By | 2018-08-10T22:44:32-04:00 August 10th, 2018|Media|Comments Off on Epilepsy Foundation Eastern Pennsylvania to Continue Affiliation with the Epilepsy Foundation of America

(Philadelphia, PA) August 3, 2018- The Epilepsy Foundation Eastern Pennsylvania (EFEPA) has agreed to renew its longstanding affiliation with the Epilepsy Foundation of America (EFA). EFEPA will continue to support the EFA’s nationwide efforts in the areas of advocacy, awareness, research and education for patients, caregivers and medical personnel in the epilepsy community. After 45 years [...]

19 October, 2016

Community Members Come Together To Support EFEPA

By | 2017-05-08T19:44:06-04:00 October 19th, 2016|Uncategorized|Comments Off on Community Members Come Together To Support EFEPA

The Epilepsy Foundation of Eastern Pennsylvania is proud to receive support from community members and clients, just like you, through third-party fundraisers throughout the year.  Individuals throughout Eastern Pennsylvania started creative and engaging fundraisers to raise awareness and support our programming. Many individuals host their fundraiser during November, which is National Epilepsy Awareness Month. Please [...]

19 October, 2016

Strike-Out Epilepsy In Stroudsburg

By | 2017-05-08T19:44:50-04:00 October 19th, 2016|Uncategorized|Comments Off on Strike-Out Epilepsy In Stroudsburg

When Alex Zabosky was diagnosed with epilepsy in 2007, it changed his family's life forever. Alex worried about how his 11-year old daughter, Alyssa, was affected by his epilepsy. Alyssa was only three when Alex was first diagnosed, and he was concerned that it scared Alyssa to see the seizures. However, Alex remained positive by [...]

18 March, 2016

Help Save our Services with the PA Budget

By | 2017-05-08T19:45:42-04:00 March 18th, 2016|Uncategorized|Comments Off on Help Save our Services with the PA Budget

Urge the Governor to Approve HB 1801 Governor Wolf now has before him House Bill 1801, a 2015-2016 supplemental State budget. This bill includes $550,000 in funding for the Epilepsy Support Services line item. The Governor has vetoed this funding in the past and we must ask him to support it now. PLEASE take the [...]

16 March, 2016

Positive Phase 3 Pivotal Study Results for Epiodiolex (cannabidiol) from GW Pharmaceuticals

By | 2017-05-08T19:46:56-04:00 March 16th, 2016|Education, Epilepsy Medication, Media|Comments Off on Positive Phase 3 Pivotal Study Results for Epiodiolex (cannabidiol) from GW Pharmaceuticals

London, UK; 14 March 2016: GW Pharmaceuticals plc (Nasdaq: GWPH, AIM: “GWP,” “GW,” “the Company” or “the Group”), a biopharmaceutical company focused on discovering, developing and commercializing novel therapeutics from its proprietary cannabinoid product platform, announces the positive results of the first pivotal Phase 3 study of its investigational medicine Epidiolex® (cannabidiol or CBD) for [...]

1 December, 2015

From our Community: How Amy Overcame her Epilepsy

By | 2017-05-08T19:47:36-04:00 December 1st, 2015|Uncategorized|Comments Off on From our Community: How Amy Overcame her Epilepsy

Amy Love had her first seizure almost 25 years ago. So Amy did what many newly diagnosed people do—she saw a neurologist and started taking medication, but she never gained seizure control. Soon after she lost her license and was forced to rely on her family for help for even the simplest, everyday tasks. Life [...]

10 August, 2015

New Study Suggests Link Between Music Therapy and Epilepsy

By | 2017-05-08T19:48:34-04:00 August 10th, 2015|Uncategorized|Comments Off on New Study Suggests Link Between Music Therapy and Epilepsy

TORONTO -- The brains of people with epilepsy appear to react to music differently from the brains of those who do not have the disorder, a finding that could lead to new therapies to prevent seizures, according to research presented at the American Psychological Association's 123rd Annual Convention. "We believe that music could potentially be [...]

5 August, 2015

First 3D-printed Drug approved by FDA is for Epilepsy

By | 2017-05-08T19:49:11-04:00 August 5th, 2015|Uncategorized|Comments Off on First 3D-printed Drug approved by FDA is for Epilepsy

The FDA (Food and Drug Administration) has approved the first every drug created by 3D printing. The medicine, Spritam (levetiracetam) is produced by Aprecia Pharmaceuticals and will be used to treat epilepsy. By producing the drug via 3D printing, the medicine dissolves faster in water than previous versions. Therefore, the pill is great for children or [...]

13 July, 2015

PhRMA and Epilepsy Foundation Report More Than 400 Medicines in Development to Treat Neurological Disorders

By | 2017-05-08T19:49:55-04:00 July 13th, 2015|Uncategorized|Comments Off on PhRMA and Epilepsy Foundation Report More Than 400 Medicines in Development to Treat Neurological Disorders

Advancements in science and precision medicine mean new hope for patients Monday, July 13, 2015 Washington, D.C. — America’s biopharmaceutical research companies are currently developing 420 medicines for patients suffering from neurological disorders, including epilepsy, Alzheimer’s disease, multiple sclerosis (MS) and Parkinson’s disease. As highlighted in a new report from the Pharmaceutical Research and Manufacturers [...]

9 July, 2015

Swim Safety Precautions

By | 2017-05-08T19:51:55-04:00 July 9th, 2015|Uncategorized|Comments Off on Swim Safety Precautions

We're sad to share this story about a young man who recently passed away due to an epileptic seizure while swimming in Ocean City, NJ. It's a somber reminder that seizures are life threatening and demand attention from researchers and the general public alike.   When planning your summer activities, please remember that if you [...]

29 June, 2015

PA Budget Eliminates Funding for Epilepsy Services

By | 2017-05-09T01:09:15-04:00 June 29th, 2015|Advocacy, Education, Legislative, Media|Comments Off on PA Budget Eliminates Funding for Epilepsy Services

    The Epilepsy Foundations of Pennsylvania rely on state funding to provide services for you! From first aid training's in schools and educating Emergency Responder's to referral services, we are able to help you better because of the support from the state budget. Unfortunately epilepsy services have been cut from the next fiscal budget. [...]

29 June, 2015

Summer Stroll for Epilepsy Team Spotlights

By | 2017-05-09T01:45:44-04:00 June 29th, 2015|Advocacy, Awareness, Donations, Fundraiser|Comments Off on Summer Stroll for Epilepsy Team Spotlights

The Summer Stroll for Epilepsy is so important to us because it brings together the entire epilepsy community in a show of support for those impacted by seizures. That's why our theme is "Who Do You Stroll For" -- to help others learn more about epilepsy and honor those living with it each and every day. One [...]

12 March, 2015

Viennese Concert and Ball for Epilepsy

By | 2017-05-09T01:46:31-04:00 March 12th, 2015|Uncategorized|Comments Off on Viennese Concert and Ball for Epilepsy

The EFEPA is excited to announce an upcoming fundraiser that is open to the public! The Viennese Concert and Ball will take place on April 19, 2015 at the Sunnybrook Ballroom in Pottstown, PA. Viennese Balls are a classic tradition dating back centuries ago. The event features a dazzling opening ceremony, musical performances, dancing and more! [...]

21 October, 2014

EFEPA Joins in with the Extraordinary Give!

By | 2017-05-09T01:47:16-04:00 October 21st, 2014|Donations|Comments Off on EFEPA Joins in with the Extraordinary Give!

This November 21 go the EXTRA mile for the EFEPA. On that day, we’re participating in the Extraordinary Give, Lancaster County’s Largest Day of Giving. For 24-hours only, visit ExtraGive.org, make a donation (min. $25) and every dollar you donate will be stretched by $250,000 from the Lancaster County Community Foundation and their presenting sponsors. PLUS, [...]

8 October, 2014

Longtime Volunteer Dan featured in Video about Life with Epilepsy!

By | 2017-05-09T01:48:11-04:00 October 8th, 2014|Uncategorized|Comments Off on Longtime Volunteer Dan featured in Video about Life with Epilepsy!

If you've been involved with the EFEPA for any length of time, then you have probably heard of Dan Dougherty. He's an active volunteer, Dan (left) with fellow Summer Stroller Mike! attends as many EFEPA events as he can, is the Team Captain for the Philly Brainstormers Summer Stroll Team, and works hard [...]

30 September, 2014

Dr. Ignacio Valencia nominated as a Philly Mag Health Hero!

By | 2017-05-09T01:48:54-04:00 September 30th, 2014|Uncategorized|Comments Off on Dr. Ignacio Valencia nominated as a Philly Mag Health Hero!

  Dr. Valencia, center, with the 2014 Camp Achieve Medical Staff! Dr. Ignacio Valencia has been nominated as a Philadelphia Magazine Health Hero! Dr. Valencia has been involved with the EFEPA for years--as a member of our Professional Advisory Board, as a speaker at Conferences, a participant at the Summer Stroll and, above all [...]

24 September, 2014

Join the EFEPA in the Philadelphia Marathon!

By | 2017-05-09T01:50:03-04:00 September 24th, 2014|Awareness, Fundraiser|Comments Off on Join the EFEPA in the Philadelphia Marathon!

Josh ran the 8k! The Epilepsy Foundation of America and the Epilepsy Foundation Eastern PA are charity partners for the 2014 Philadelphia Marathon! By joining our team, you can raise funds that go towards research and services for those impacted by epilepsy. You can choose to run the 8k (approximately 5 miles), half [...]

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