Legislative

18 May, 2019

Teens Speak Up, Speak Out

By |2019-05-18T06:11:28-04:00May 18th, 2019|Advocacy, Legislative|Comments Off on Teens Speak Up, Speak Out

Epilepsy Advocates and Partners Successfully Preserve Medicare's Six Protected Classes Policy Last month, teen advocates and their families from around the country gathered in Washington, DC for the Epilepsy Foundation of America's Teen Speak Up and Public Policy Institute Conference. The Epilepsy Foundation Eastern PA was proud to send Ben Manicke of Bangor, PA and [...]

29 June, 2015

PA Budget Eliminates Funding for Epilepsy Services

By |2017-05-09T01:09:15-04:00June 29th, 2015|Advocacy, Education, Legislative, Media|Comments Off on PA Budget Eliminates Funding for Epilepsy Services

    The Epilepsy Foundations of Pennsylvania rely on state funding to provide services for you! From first aid training's in schools and educating Emergency Responder's to referral services, we are able to help you better because of the support from the state budget. Unfortunately epilepsy services have been cut from the next fiscal budget. [...]

5 August, 2014

EFEPA Supports Federal Medical Cannabis Bill

By |2017-05-09T01:51:01-04:00August 5th, 2014|Legislative, Treatment|Comments Off on EFEPA Supports Federal Medical Cannabis Bill

 Epilepsy Foundation Eastern PA Supports Medical Cannabis Legislation August 5, 2014 Philadelphia, PA—The Epilepsy Foundation Eastern Pennsylvania (EFEPA) is proud to declare its support for Representative Scott Perry’s bi-partisan legislation H.R. 5226, the “Charlotte’s Web Medical Hemp Act of 2014.” As a patient advocacy organization and the only service provider for individuals with epilepsy in [...]

18 July, 2014

Department of Defense Allocates $7.5 Million for Epilepsy Research in Appropriations Bill!

By |2017-05-09T01:53:21-04:00July 18th, 2014|Legislative|Comments Off on Department of Defense Allocates $7.5 Million for Epilepsy Research in Appropriations Bill!

CHICAGO, July 17, 2014 /PRNewswire-USNewswire/ -- "CURE applauds the announcement today from the U.S. Department of Defense – allocating $7.5 million dedicated to epilepsy research – and thanks Senator Dick Durbin (D-IL) for his leadership on this issue. The incidence of epilepsy increased by an alarming 52 percent from 2006 to 2010, with approximately 8 percent of those afflicted having been [...]

2 May, 2014

Take Action Now and Protect Access to Medications

By |2017-05-09T01:56:20-04:00May 2nd, 2014|Legislative, Medication|Comments Off on Take Action Now and Protect Access to Medications

Pennsylvania - Protect Access to Medications Exclude Epilepsy Medications from the Prescription Drug Monitoring Program   Take Action!   The Pennsylvania Senate is considering a bill, SB 1180, which would expand the state's Prescription Drug Monitoring Program to include Schedule V drugs, including anti-epilepsy drugs (AEDs). The House considered a bill to expand the prescription drug monitoring [...]

2 April, 2014

Sign the Epilepsy Research and Medical Marijuana Petition!

By |2017-05-09T01:58:30-04:00April 2nd, 2014|Advocacy, Awareness, Education, Epilepsy Medication, Legislative, Treatment|Comments Off on Sign the Epilepsy Research and Medical Marijuana Petition!

  The Epilepsy Foundation of America has started a petition on the White House website. We need your help!  We are calling on the President and the Drug Enforcement Administration to reschedule marijuana to a lower level under the controlled substances act.  The Foundation supports this change to benefit greater access to marijuana and its [...]

7 March, 2014

Funding for Epilepsy Services Eliminated

By |2017-05-09T01:59:16-04:00March 7th, 2014|Advocacy, Awareness, Legislative|Comments Off on Funding for Epilepsy Services Eliminated

The Epilepsy Foundations of Pennsylvania rely on state funding to provide services for you! From first aid training's in schools and educating Emergency Responder's to referral services, we are able to help you better because of the support from the state budget. Unfortunately epilepsy services have been cut from the next fiscal budget. This is [...]

27 September, 2013

Take Action Now in Pennsylvania

By |2017-05-09T02:01:24-04:00September 27th, 2013|Awareness, Legislative|Comments Off on Take Action Now in Pennsylvania

Your Voice is Needed in Pennsylvania! Protect Access to Medication in Pennsylvania! Urge your legislator to exclude epilepsy medications from the prescription drug monitoring program The Pennsylvania legislature is considering a bill, HB 1694, that would expand the state's Prescription Drug Monitoring Program to include anti-epilepsy drugs (AEDs). Drug monitoring programs have been established in [...]

7 March, 2013

Anyone in the World Can Have a Seizure… But in PA, Epilepsy Programs are in More Danger!

By |2017-05-09T13:19:18-04:00March 7th, 2013|Legislative|Comments Off on Anyone in the World Can Have a Seizure… But in PA, Epilepsy Programs are in More Danger!

Act NOW - Contact Your PA State Representative and Senator Today VOICE YOUR SUPPORT FOR EPILEPSY PROGRAMS March 12th is Epilepsy Awareness Day in PA's state capital in Harrisburg. Epilepsy services have been zeroed out in the proposed budget so we need your help! Take the time to call,e-mail, write or fax your PA State Representative [...]

28 September, 2012

PA Voter ID Law Blocked

By |2017-05-09T13:26:40-04:00September 28th, 2012|Legislative|Comments Off on PA Voter ID Law Blocked

UPDATE!!! Voter Registration ID law is Blocked for the Upcoming Presidential Election Know YOUR Voting Rights Pennsylvania Election Day is Tuesday, November 6, 2012. You must register to vote by Tuesday, October 9, 2012. What You Need to Know About PA’s New Voter ID Law Starting with the November 6, 2012 election, you will be [...]

6 July, 2012

Breaking down the Affordable Care Act

By |2017-05-09T13:29:23-04:00July 6th, 2012|Awareness, Legislative|Comments Off on Breaking down the Affordable Care Act

For decades, American presidents and legislative leaders have attempted to pass a law which would lead to greater accessibility to quality affordable health care.  On March 23, 2010, the first national law addressing this issue was signed into law. The U.S. Supreme Court has just determined that the Act is, in fact, constitutional.  Most of [...]

24 April, 2012

April 2012 E-Newsletter

By |2017-05-09T13:31:09-04:00April 24th, 2012|Advocacy, Awareness, Education, Fundraiser, Legislative, Newsletter|Comments Off on April 2012 E-Newsletter

Visit our site April 2012 Calling All Epilepsy Advocates! If Someone You Love Has Epilepsy or Seizures... Contact PA Governor Corbett and your elected officials today! The upcoming month is critical to reinstating the state funding for epilepsy services and it depends on you! Do not rely on your neighbor to speak up; we need [...]

23 April, 2012

Kids Speak Up! 2012

By |2017-05-09T13:32:47-04:00April 23rd, 2012|Advocacy, Awareness, Legislative|Comments Off on Kids Speak Up! 2012

On April 1st - April 3rd, the EFEPA participated in the Epilepsy Foundation of America's annual Kids Speak Up!  This program is the centerpiece advocacy initiative with over 250 advocates, including other Epilepsy Foundation affiliate staff, parents, children, doctors and volunteers that come from across the nation to share their story, raise awareness, [...]

7 March, 2012

Call to Action

By |2017-05-09T13:44:58-04:00March 7th, 2012|Advocacy, Legislative|Comments Off on Call to Action

GOVERNOR CORBETT PROPOSES ELIMINATION OF EPILEPSY FUNDING IN BUDGET ACT NOW - EPILEPSY HAS BEEN OVERLOOKED & UNDER FUNDED FOR TOO LONG! On Tuesday, February 7, Governor Tom Corbett presented his state budget proposal to the General Assembly calling for the elimination of 33 state budget line items.  Included in this is the Department of [...]

15 July, 2011

Thank You PA Epilepsy Advocates!

By |2017-05-09T13:41:40-04:00July 15th, 2011|Advocacy, Legislative|Comments Off on Thank You PA Epilepsy Advocates!

Dear Pennsylvania Epilepsy Advocates, You've done it!  You helped to ensure that funding for epilepsy services in Pennsylvania will continue throughout next year.  The final state budget enacted by Pennsylvania does include a specific line item for epilepsy services and $390,000 in state funding for epilepsy programs. Congratulations to all of the advocates who made this possible! [...]

23 June, 2011

Call to Action!

By |2017-05-09T13:42:31-04:00June 23rd, 2011|Advocacy, Legislative|Comments Off on Call to Action!

FUNDING FOR EPILEPSY SERVICES CUT ACT NOW - EPILEPSY HAS BEEN OVERLOOKED & UNDER FUNDED FOR TOO LONG! The Pennsylvania Senate plans to vote on a state budget proposal within the next few days, BUT the current budget proposals do not have a line item or funding for epilepsy services! PLEASE, take the time today [...]

Go to Top