The field of seizure detection is growing and changing constantly. The Foundation will work to keep this information up-to-date as seizure alert and detection devices continue to improve in their efficacy and responsiveness.
The benefits of these devices include:
- Improved safety & independence
- Ability to alert caregiver/family member/friend
- Track seizures and assess whether treatment is working
Great resources about devices: https://www.epilepsy.com/tools-resources/device-wiki & https://www.dannydid.org/epilepsy-sudep/devices-technology/
SAMi Monitor (Camera device to record audio & video of seizure-like activity): http://www.samialert.com
Emfit (muscle contraction monitor that attaches to a mattress): https://www.emfit.com/seizure-muscle-contraction-monitor
- SmartWatchTM: http://www.smart-monitor.com
- Embrace: https://www.empatica.com/product-embrace
- NightWatch: https://www.nightwatchepilepsy.com
SeizAlarm (seizure detection app for the iPhone & Apple Watch): http://seizalarm.com/
Inspyre by Smart Monitor for SmartWatchTM (seizure detection app for the Apple Watch or Samsung Watch): http://www.smart-monitor.com/
Brain Sentinel SPEAC System (utilizing sEMG technology; attaches to bicep): http://speacsystem.com
Seizure Alert Dogs
- Canine Partners 4 Life: http://k94life.org
- 4 Paws for Ability: http://4pawsforability.org
- Canine Assistants: http://www.canineassistants.org
- Susquehanna Service Dogs: www.keystonehumanservices.org/ssd
Financial assistance for seizure alerts to those with epilepsy is available. To apply for assistance, visit:
- Chelsea Hutchison Foundation (grants for seizure response dogs & devices). Email requests to [email protected]. Visit their website at: https://chelseahutchisonfoundation.org/
- Danny Did Foundation https://www.dannydid.org/assets/1/6/DeviceOverview.FINAL.2019.pdf
- JoshProvides Epilepsy Assistance Foundation, Inc https://joshprovides.org/wp-
These sites provide web and app versions of journals to track your medical history, seizures and other symptoms. Self-management programs help participants learn more about their condition and teach them proven skills to improve their ability to manage their health. Self-management programs can help participants:
- Follow their medication schedule
- Reduce their stress or depressive symptoms
- Help better communicate with health care providers
Epilepsy Foundation My Seizure Diary: https://diary.epilepsy.com
**Epsy connects with Epsy Hub the platform for healthcare professionals, to help improve conversations in every appointment
Managing Epilepsy Well Network: https://managingepilepsywell.org (The EFEPA offers HOBSCOTCH & PACES Programs)
Epilepsy Foundation of America: https://www.epilepsy.com/tools-resources/forms-resources/communication-tools
Seizure Tracker: https://www.seizuretracker.com
The home is the most common place for seizure-related accidents. Activities such as bathing and cooking place the person with seizures at risk for injury. Making simple changes in household activities or your environment may create a safer home.
Check out our 2022 Webinar on Maximizing Safety & Independence at Home by Occupational Therapist, Lindsay Delong, OTR/L, Founder of EquipMeOT, LLC. She focuses on the home and includes techniques and tools for improving sleep, bathing, toileting, dressing, kitchen activities and so much more!
Being active and engaged in your community is an important part of quality of life. It is important to consider how you can be prepared and safe while you are enjoying time in your community.
Check out our 2022 Webinar on Maximizing Community Access & Participation by Occupational Therapist, Lindsay Delong, OTR/L, Founder of EquipMeOT, LLC. She provides equipment recommendations, techniques, and activity ideas to facilitate greater participation in community-based activities such as parks, pools, gyms, etc. for those living with epilepsy.
Our friends at RibCap (ribcap.com) are offering a 10% discount on their high-quality protective products. Their certified helmets are effective, stylish, and come in different sizes and colors. They also offer adaptive clothing! Click here for their catalog.
The code for a 10% discount is EPI_EFEPA to apply at check out.
As a service to its members and clients, the Epilepsy Foundation Eastern Pennsylvania provides this listing for informational purposes only. The Epilepsy Foundation Eastern Pennsylvania makes no recommendations, guarantees or warranties regarding the services provided.