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March, 2013
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November, 2012
You are the Key to Independence
We want to take a moment to tell you about one of our devoted volunteers, Dan Dougherty. Dan has had epilepsy since age 10 and lives every day wondering when his next seizure will occur. This is the reality that many individuals face every day, but Dan doesn’t let his uncontrolled seizures stop him from [...]
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November, 2012
RAISE Resolution Needs Your Help
The RAISE Resolution (House Resolution 298) Needs Your Help Now, More Than Ever! Take Action! Contact your representative now - Time is running out With 105 cosponsors, House Resolution 298 (the RAISE Resolution) has plenty of support. Thanks to all of your efforts, RAISE has come a very long way. However, your work is not [...]
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November, 2012
November 2012 Epilepsy Awareness Month!
November is National Epilepsy Awareness Month and the Epilepsy Foundation Eastern Pennsylvania is spreading the news and asking our 18 counties to join us in awareness. The EFEPA organized many ways you can participate in National Epilepsy Awareness Month. We will be kicking off the month with an awareness campaign, including Philadelphia’s skyline going purple, [...]
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September, 2012
PA Voter ID Law Blocked
UPDATE!!! Voter Registration ID law is Blocked for the Upcoming Presidential Election Know YOUR Voting Rights Pennsylvania Election Day is Tuesday, November 6, 2012. You must register to vote by Tuesday, October 9, 2012. What You Need to Know About PA’s New Voter ID Law Starting with the November 6, 2012 election, you will be [...]
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September, 2012
Home Security Tips For Epilepsy Sufferers
Epilepsy is a condition that requires the full attention of all family members on a continuous basis in order to prevent physical injuries during sudden seizures. In this regard, all family members are required to carefully asses all areas around the house to determine their potential perils. Home safety is crucial for the 65 million [...]
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July, 2012
Epilepsy Services Saved
It is with great sincerity that we inform you that epilepsy services have been restored in the state budget. The Epilepsy Foundation Eastern Pennsylvania (EFEPA) encourages you to thank your elected officials for supporting the 2012-13 appropriation for epilepsy support services within Pennsylvania’s General Fund Budget. Our entire organization appreciates the fact that you reached [...]
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July, 2012
Breaking down the Affordable Care Act
For decades, American presidents and legislative leaders have attempted to pass a law which would lead to greater accessibility to quality affordable health care. On March 23, 2010, the first national law addressing this issue was signed into law. The U.S. Supreme Court has just determined that the Act is, in fact, constitutional. Most of [...]
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June, 2012
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April, 2012
April 2012 E-Newsletter
Visit our site April 2012 Calling All Epilepsy Advocates! If Someone You Love Has Epilepsy or Seizures... Contact PA Governor Corbett and your elected officials today! The upcoming month is critical to reinstating the state funding for epilepsy services and it depends on you! Do not rely on your neighbor to speak up; we need [...]
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April, 2012
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April, 2012
Kids Speak Up! 2012
On April 1st - April 3rd, the EFEPA participated in the Epilepsy Foundation of America's annual Kids Speak Up! This program is the centerpiece advocacy initiative with over 250 advocates, including other Epilepsy Foundation affiliate staff, parents, children, doctors and volunteers that come from across the nation to share their story, raise awareness, [...]
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April, 2012
Institute of Medicine’s Report: Epilepsy Across the Spectrum
Recently, the Institute of Medicine (IOM) released its report, Epilepsy across the Spectrum. The report highlights numerous gaps in the knowledge and management of epilepsy and recommends actions for improving the lives of those with epilepsy and their families, while promoting a better understanding of the disorder. It also brings to light that at least [...]
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March, 2012
Call to Action
GOVERNOR CORBETT PROPOSES ELIMINATION OF EPILEPSY FUNDING IN BUDGET ACT NOW - EPILEPSY HAS BEEN OVERLOOKED & UNDER FUNDED FOR TOO LONG! On Tuesday, February 7, Governor Tom Corbett presented his state budget proposal to the General Assembly calling for the elimination of 33 state budget line items. Included in this is the Department of [...]
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March, 2012
March 2012 E-Newsletter
Visit our site March 2012 CALL TO ACTION! Governor Corbett Proposes Elimination of Epilepsy Funding in Budget On Tuesday, February 7, Governor Tom Corbett presented his state budget proposal to the General Assembly calling for the elimination of 33 state budget line items. Included in this is the Department of Health line item for epilepsy [...]
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January, 2012
Young Friends Mardi Gras Gala
PURCHASE YOUR TICKETS TODAY: www.mardigrasphilly.kintera.org
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January, 2012
ONFI (clobazam) Tablets now Available in the U.S. at Pharmacies
DEERFIELD, Ill.--(BUSINESS WIRE)--Lundbeck announced today that ONFI Tablets are now available for prescribing in the United States. The FDA recently approved ONFI for adjunctive treatment of seizures associated with Lennox-Gastaut syndrome (LGS) in patients two years and older.1 ONFI is an oral anti-epileptic drug (AED) of the benzodiazepine class, and is a 1,5 benzodiazepine.1 ONFI [...]
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January, 2012
Gregory Osberg of Philadelphia Media Network, Inc. to be Crowned King of Mardi Gras
CONTACT: Madeline Bergman, Development Assistant 215-629-5003 x106 development@efepa.org FOR IMMEDIATE RELEASE GREGORY J. OSBERG TO BE CROWNED KING OF MARDI GRAS GALA Publisher and CEO of Philadelphia Media Network Inc., Gregory J. Osberg to be honored local non-profit’s annual Mardi Gras Gala PHILADELPHIA—December 20, 2011– Gregory J. Osberg, Publisher and CEO of Philadelphia Media Network, [...]
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December, 2011
Help us Better Educate First Responders in 2012
Josh, an Epilepsy Foundation Eastern PA volunteer, first started working with the EFEPA as a Camp Achieve counselor which led him to establish the EFEPA Youth Council. He is taking his passion for the Foundation and his career as a First Responder to help the EFEPA with a new, important initiative: educating emergency personnel on [...]
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December, 2011
Eastern PA Region Celebrates November Epilepsy Awareness Month
The EFEPA joined in the national celebration of Epilepsy Awareness Month this November by holding several events and awareness activities throughout our 18-county service area. In Philadelphia, well-known buildings and landmarks like the National Constitution Center, Ben Franklin Bridge, Liberty Place and the PECO Building were lit up purple, the international color of epilepsy. On [...]