This November 21 go the EXTRA mile for the EFEPA. On that day, we’re participating in the Extraordinary Give, Lancaster County’s Largest Day of Giving. For 24-hours only, visit ExtraGive.org, make a donation (min. $25) and every dollar you donate will be stretched by $250,000 from the Lancaster County Community Foundation and their presenting sponsors. PLUS, [...]
If you've been involved with the EFEPA for any length of time, then you have probably heard of Dan Dougherty. He's an active volunteer, Dan (left) with fellow Summer Stroller Mike! attends as many EFEPA events as he can, is the Team Captain for the Philly Brainstormers Summer Stroll Team, and works hard [...]
Dr. Valencia, center, with the 2014 Camp Achieve Medical Staff! Dr. Ignacio Valencia has been nominated as a Philadelphia Magazine Health Hero! Dr. Valencia has been involved with the EFEPA for years--as a member of our Professional Advisory Board, as a speaker at Conferences, a participant at the Summer Stroll and, above all [...]
Josh ran the 8k! The Epilepsy Foundation of America and the Epilepsy Foundation Eastern PA are charity partners for the 2014 Philadelphia Marathon! By joining our team, you can raise funds that go towards research and services for those impacted by epilepsy. You can choose to run the 8k (approximately 5 miles), half [...]
Epilepsy Foundation Eastern PA Supports Medical Cannabis Legislation August 5, 2014 Philadelphia, PA—The Epilepsy Foundation Eastern Pennsylvania (EFEPA) is proud to declare its support for Representative Scott Perry’s bi-partisan legislation H.R. 5226, the “Charlotte’s Web Medical Hemp Act of 2014.” As a patient advocacy organization and the only service provider for individuals with epilepsy in [...]
Researchers from the Health System and the are challenging the best minds in science to improve how epilepsy is treated. The "Seizure Detection and Prediction Challenge" will involve two competitions, with $28,000 in prize money, aimed at finding new ways to detect and predict seizure onset. Epilepsy is a brain disorder that afflicts 3 million Americans and [...]
American Health Packaging Announces the Voluntary Nationwide Recall of Ibuprofen Tablets, USP, 600 mg, 100 Hospital Unit Dose and Oxcarbazepine Tablets, 300 mg, 100 Hospital Unit Dose FOR IMMEDIATE RELEASE - July 18, 2014 - American Health Packaging (Columbus, OH) has voluntarily recalled Lot #142588, Expiration Date, 01/2016 of Ibuprofen Tablets, USP, 600 mg, in a [...]
CHICAGO, July 17, 2014 /PRNewswire-USNewswire/ -- "CURE applauds the announcement today from the U.S. Department of Defense – allocating $7.5 million dedicated to epilepsy research – and thanks Senator Dick Durbin (D-IL) for his leadership on this issue. The incidence of epilepsy increased by an alarming 52 percent from 2006 to 2010, with approximately 8 percent of those afflicted having been [...]
June 20, 2014: The 18th Annual Summer Stroll for Epilepsy is almost here! We have been astounded by all of your efforts and are so appreciative of your dedication to raising awareness and funds for those with epilepsy. You can still register up until 2:00 pm TODAY, Friday June 20. People who do not register on the [...]
Mark your calendars: July 26th is Epilepsy Awareness Night with the Philadelphia Phillies! Watch our hometown heroes take on the Arizona Diamondbacks while you treat the hero in your life to a wonderful night. Plus you'll help us create more awareness of epilepsy! What could be better? Visit www.phillies.com/epilepsyfoundation to purchase your tickets. Prices range from $17 [...]
Pennsylvania - Protect Access to Medications Exclude Epilepsy Medications from the Prescription Drug Monitoring Program Take Action! The Pennsylvania Senate is considering a bill, SB 1180, which would expand the state's Prescription Drug Monitoring Program to include Schedule V drugs, including anti-epilepsy drugs (AEDs). The House considered a bill to expand the prescription drug monitoring [...]
The Epilepsy Foundation of America has started a petition on the White House website. We need your help! We are calling on the President and the Drug Enforcement Administration to reschedule marijuana to a lower level under the controlled substances act. The Foundation supports this change to benefit greater access to marijuana and its [...]
The Epilepsy Foundations of Pennsylvania rely on state funding to provide services for you! From first aid training's in schools and educating Emergency Responder's to referral services, we are able to help you better because of the support from the state budget. Unfortunately epilepsy services have been cut from the next fiscal budget. This is [...]
FDA Warns of Serious Skin Reactions and has Approved Label Change The U.S. Food and Drug Administration (FDA) is warning the public that the anti-seizure drug Onfi (clobazam) can cause rare but serious skin reactions that can result in permanent harm and death. We have approved changes to the Onfi drug label and the patient [...]
Your Voice is Needed in Pennsylvania! Protect Access to Medication in Pennsylvania! Urge your legislator to exclude epilepsy medications from the prescription drug monitoring program The Pennsylvania legislature is considering a bill, HB 1694, that would expand the state's Prescription Drug Monitoring Program to include anti-epilepsy drugs (AEDs). Drug monitoring programs have been established in [...]
FOR IMMEDIATE RELEASE CONTACT: Matt Flesch 847-282-1154 ONFI® (clobazam) CIV Scored Tablets and Oral Suspension Now Available in U.S. Pharmacies New Formulations Provide Dosing Flexibility for Physicians and their Patients ONFI.com Updated with New Tools and Resources for Families Deerfield, Ill. August 12, 2013 – Lundbeck announced today that ONFI (clobazam) CIV will be available [...]
Reserve Your Spot Today for the... 25th Charley Roach Golf Invitational benefitting the Epilepsy Foundation Eastern PA We hope you will be able to join us at this year's Charley Roach Golf Invitational on September 10th, at RiverCrest Golf Club and Preserve. Now you can purchase your tickets directly online at our website: www.golf4epilepsy.kintera.org or [...]
Please consider supporting Camp Achieve 2013 and pave the way for our campers to create unforgettable memories, build relationships and experience the best that summer has to offer! This summer while most kids are enjoying their time off at camp, swimming, or even going for a bike ride, know that there are many kids who [...]
The L.E.A.P. to Understanding – Local Epilepsy Awareness Project Invites You To ... Join Us on For A Community Conversation About Epilepsy/Seizure Disorders With Your Help We Will: Identify our community needs, existing services, and service gaps. Deepen our connections as a community concerned about the impact of epilepsy on children. Inspire action that would [...]
For more information contact Sue at slivingston@efepa.org.
