Support Group Activities

supportgroup

Epilepsy effects much more than just the brain–it has a great impact on your daily life and loved ones. All to often people with epilepsy experience feelings of isolation, low-self esteem and negative self-image from issues such as prejudice, unemployment & personal relationship difficulties. The emotional weight of epilepsy can cause a greater loss of one’s quality of life than the seizures themselves.

For caregivers, the time and resource commitment of epilepsy can interfere with work and other daily activities and the burden that they carry can lead to depression, anxiety, and loss of vitality. Therefore education and support are so important for persons with epilepsy and their caregivers. Accessing the latest information, resources and social support can make managing the impact of epilepsy much easier. Support Groups throughout Eastern PA meet regularly for discussion and mutual peer support.

If you have questions before attending your first meeting about what to expect, please feel free to call us at 215-629-5003.

View our calendar below and stay up to date on the support group meetings in your area.

 

The EFEPA is excited to announce two new support groups in your area!

These meetings are free and open to the public.

  • Parents Support Group: Beginning Thursday, October 9 2014 from 6:30 pm – 8:00 pm at Grandview Hospital, 700 Lawn Ave Sellersville, PA 18960.

For more information contact Sue Livingston, EFEPA Education Coordinator at 215-629-5003 or by email at slivingston@efepa.org.

Hope to see you there!
 
Local Epilepsy Action Project

 The Epilepsy Foundations of Pennsylvania, in conjunction with the PA Department of Health, Bureau of Family Health and Special Kids Network of Care are hosting a series of local meetings, lead by parents, to talk with families with children who are growing up with seizures and epilepsy.

L.E.A.P. to Understanding is an opportunity for family members, medical professionals, school personnel, and others concerned about epilepsy to come together and share experiences and talk about the needs, gaps in services and  recommendations for improving  services in Pennsylvania.  Take this opportunity to review the statewide report that was generated using community input from meetings just like this!

Two programs are coming up in Berks County and West Chester. Check out the flyer here for more details!

Choose a region for details and times of Support Group Meetings:

Allentown

Berks County

Bucks County

Delaware County

Easton Lancaster

Monroe County

Philadelphia

Scranton

Wilkes Barre

Wayne & Pike County

Berks County

Location: Reading Hospital & Medical Center, Sixth Ave and Spruce Street, West Reading, PA, R ground Conference Room 2. Meetings are held every 2nd Thursday at 6:30pm, unless otherwise noted. For more information and to RSVP, please contact Kerri Michnya at kmichnya@efepa.org or (800) 887-7165 x104.

February 13, 2014 – CANCELLED due to inclement weather

April 10, 2014

June 12, 2014– CANCELLED 

August 14, 2014

October 9, 2014

December 11, 2014

Bucks County

Location: St Mary Medical Center, Langhorne-Newtown Rd., Langhorne, PA, Medical Conference Room, 1st Floor. Meetings are held every 1st Thursday and begin at 6:30pm. Hope to see you there! For more information, and to RSVP, please contact Sue Livingston, Education Coordinator at slivingston@efepa.org or (215) 629-5003 x102. Co-facilitators are Sue Livingston and Denise Taylor. January 2, 2014

February 6, 2014

March 6, 2014

April 3, 2014

May 1, 2014

June 5, 2014

August 7, 2014 — 4th Annual Bucks County Family Picnic at Core Creek State Park, Site 11. 908 East Bridgetown Pike, Langhorne PA. We’ll provide dinner but you’re welcome to bring a dessert or salad to share! Click here for more details. 

September 4, 2014

October 2, 2014

November 6, 2014–Topic: Dealing with Disclosure in Work and Life

December 4, 2014

Delaware County Location: Riddle Hospital, 1088 Baltimore Pike, Media,PA. Rothman Building, Health Center 4, Conference Room 2. Meetings are held every 3rd Wednesday of the month and begin at 6:30pm. Hope to see you there.

January 15, 2014

February 19, 2014

March 19, 2014

April 16, 2014

May 21, 2014

June 18, 2014

July 16, 2014

September 17, 2014

October 15, 2014– Speaker: Christopher Skidmore, MD Thomas Jefferson Comprehensive Epilepsy Center, presenting on New Treatment Options.

November 19, 2014

Easton Location: TBA. Location change. Future meetings are pending. Check back for updates.  Meetings are held every 2nd Tuesday and begin at 6pm. To register please call St. Lukes Infoline at (866) 785-8537 and reference their monthly Epilepsy Education Group.

January 14, 2014

February 11, 2014

March 11, 2014–“Making the Most of Your Office Visit” Preparing for your office visit can help you achieve the best outcome.  Find out some tips and some tools that can help you make the most of your office visit.

April 8, 2014–“Understanding EEG’s” EEG (electroencephalogram) is a common test when evaluating for seizures/epilepsy.  This presentation will provide information on the specifics of the testing and the different types of EEG testing.  Video Monitoring will also be discussed.

May 13, 2014

June 10, 2014

July 8, 2014 Future dates are postponed until further notice pending a location change.

Lancaster Location: 142 Park City Center, Community Meeting Room, Kohl’s wing, Lancaster PA. Meetings are held the 4th Wednesday of the month and begin at 6pm, unless otherwise noted. Hope to see you there! For more information, and to RSVP, please contact Kerri Michnya, Lancaster Coordinator at kmichnya@efepa.org or 800-887-7165 x104.

January 22, 2014

February 26, 2014

March 19, 2014

April 23, 2014

June 25, 2014

August 27, 2014–Topic: Medical Marijuana, William Trescher, MD Penn State Hershey Medical Center

September 24, 2014

October 22, 2014

November 19, 2014

December 17, 2014

Allentown Location: Lehigh Valley Hospital, Kasych Family Pavilion, 1250 South Cedar Crest Blvd, Allentown, PA, 18105. Meetings are held every 2nd Thursday and begin at 6pm. Hope to see you there! For more information, and to RSVP, please contact Ellen Baca, Lehigh Valley Coordinator at lv@efepa.org or (610) 737-0613.

January 9, 2014

February 13, 2014- CANCELLED due to inclement weather

March 13, 2014

April 10, 2014

May 8, 2014–  Speaker: Dr. Jay Varrado, Lehigh Valley Neurology Topic:  Seizures, Head injuries and Concussions

June 12, 2014– Speaker: Susan Ingram, PhD, Neuropsychiatry. Topic: Strategies to Cope with Memory Difficulties

July 10, 2014– Speaker: Canine Partners for Life Topic: Seizure Dogs and Companion Dogs

August 14, 2014– Speaker: Dan Doughtery Topic: Personal Story of Living with Epilepsy & Self Advocacy

September 11, 2014– Speaker:  EEG Technician from Lehigh Valley Health Network presenting on how an EEG (electroencephalogram) is used to diagnose epilepsy.

October 9, 2014– Speaker:  Adam Cobb, physical therapist, will discuss the role of Physical therapy in assisting patients with Epilepsy in restoring strength, balance, and walking which can be affected by repeated seizures and secondary effects of medications.

November 13, 2014– Speaker:  Jamie Hall, Esq will present on Social Security Disability benefits.

December 11, 2014– Family and Friends Holiday Party!

Monroe County Neurology Associates of Monroe County 3 Parkinsons Road East Stroudsburg, PA 18301

For more information, and to RSVP, please contact Ellen Baca, Lehigh Valley Coordinator at lv@efepa.org or (610) 737-0613.

Philadelphia

Location: JFK Community MH/MR Center located at 112 N. Broad Street, Philadelphia, PA. Meetings are held every 1st Tuesday and begin at 6:15pm. Hope to see you there! For more information, and to RSVP, please contact Susan Bolno, Adult Resources Coordinator at adultservices@efepa.org or (215) 629-5003 x103

January 7, 2014

February 4, 2014

March 4, 2014

April 1, 2014

May 6, 2014

June 3, 2014

July 1, 2014

August 5, 2014

September 2, 2014

October 7, 2014

December 2, 2014

Scranton

Location: CMC Professional Bldg., CME Room, 1st Floor, 315 Colfax Ave., Scranton, PA. Meetings are held every 3rd Wednesday and begin at 7 pm. Hope to see you there! For more information, and to RSVP, please contact Mary Loughlin. She may be reached at epilepsywv@efepa.org or (570) 592-1150.

January 15, 2014

February 19, 2014

March 19, 2014

April 16, 2014

May 21, 2014

June 18, 2014

July 16, 2014

August 20, 2014

September 17, 2014

October 17, 2014

November 2014 – TBA

December 2014 – TBA

Wilkes-Barre

Location: John Heinz Institute, 150 Mundy Street, Wilkes-Barre, PA. Located in the Patient Dining Room unless otherwise specified. Meetings are held every 4th Wednesday and begin at 7 pm. Hope to see you there! For more information, and to RSVP, please contact Marianne Sailus, the facilitator of the support group meetings. She may be reached at the John Heinz Institute at 570-830-2039.

January 22, 2014

February 26, 2014

March 26, 2014

April 23, 2014

May 28, 2014

June 25, 2014

July 23, 2014

August 27, 2014

September 24, 2014

October 22, 2014

November 2014 – TBA December 2014 – TBA

Wayne & Pike County

Location: Hawley Senior Center, VFW Bld., 300 Park Place, Hawley, PA. Meetings are held every 4th Tuesday each month at 6:00 pm. To RSVP, please contact Mary Loughlin at (570) 592-1150. Support Group Facilitator –Linda Olsen

January 28, 2014

February 25, 2014

March 25, 2014

April 22, 2014

May 27, 2014

June 24, 2014

July 22, 2014

August 26, 2014

September 23, 2014

October 28, 2014

November 25, 2014

December 2014 — TBA

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