If you would like to schedule a seizure recognition and first aid training for your school/family/organization/business, please contact us at [email protected] and/or 215-629-5003. Please note, all training programs are NOT recorded for later viewing. All our school personnel trainings, educational conferences, and educational webinarsprovide Act 48 credits.
Description: This training will teach emergency personnel how to recognize the signs and symptoms of various seizure types, the administration of proper seizure first aid, ways in which to handle epilepsy-related events, latest treatments and devices, and the unique needs of people living with epilepsy. This training is approved for NJ and PA CEUs. Those who need CEUs will be entered into the class in the EMS registry by the EFEPA. A certificate of completion and epilepsy resources will be emailed after the training.
Date & Time: Meet Paul & Colleen: Tuesday, January 30 from 6-7pm. Meet DeJah: Wednesday, January 31 from 6-7pm
Description: Learn about living with epilepsy and episodes of frequent seizures. Listen to someone living with seizures and how they manage their unpredictability. Learn more about living with epilepsy and cluster seizures. Join the discussion!
Description: This training will acquaint school nurses with new seizure classifications, seizure first-aid, and latest treatments and devices to allow them a better understanding of epilepsy and implications of care. The training will also present the social, psychological, and cognitive impacts that epilepsy may have for a student. There will be time at the end for an interactive Q&A. A certificate of completion and epilepsy resources will be emailed after the training. Act 48 credits given.
Description: The training will acquaint school staff with new seizure classifications, seizure first-aid, and latest treatments and devices to allow them a better understanding of epilepsy and implications for care. The training will also present the social, psychological, and cognitive impacts that epilepsy may have for a student. There will be time at the end for an interactive Q&A. A certificate of completion and epilepsy resources will be emailed after the training. Act 48 credits given.
Description: Nicole Stawicki, Registered Dietitian at the Northeast Regional Epilepsy Group, will explore a range of dietary interventions tailored to enhance the quality of life for adults living with epilepsy. Beyond the Modified Atkins Diet, Nicole will delve into various proven and impactful dietary approaches that have shown promise in managing and reducing seizures.
Description: Join us each week as we learn to navigate special needs planning with financial planning experts Bruce Sham and Susan Walter and various guests. This series will address legal documents, taxes, government benefits, difficult decisions and conversations, sources and uses of funding/money, planning for future financial health, and transitions into adulthood and retirement.
Descripción: Este seminario web discutirá cómo comprender mejor la importancia de características de las personas con epilepsia, aspectos a tener en cuenta durante el diagnóstico, y más.
Advances in Surgical Options for Epilepsy Webinar
Date & Time: Tuesday, April 18, 2023, from 7-8pm
Description: Dr. Michael Sather of Penn State Health will present the latest surgical treatments available for people living with epilepsy. Surgical options discussed will include focal resection, laser ablation, and the VNS, RNS and DBS neurostimulation devices.
Celebrating Diversity in Women’s Health and Epilepsy: Hormonal Wellness & Empowerment Conference
Date & Time: Saturday, April 22, 2023 from 10 am – 1 pm
Location: The Towne Hall at Towne House, Media, PA.
Description: Join the EFEPA on Saturday, April 22nd, from 10:00 am to 1:00 pm for a Brunch & Learn on Hormonal Wellness & Empowerment! Celebrate all forms of womanhood and living our best lives with epilepsy while enjoying a delicious brunch spread, good company, and great learning opportunities!
How AmbitCare’s free genetic counseling can help you find answers about the underlying cause of your child’s epilepsy
Learn from EFEPA and AmbitCare about how there may be a genetic cause of your child’s seizures and developmental delays and how AmbitCare’s free resources, including free virtual genetic counseling for qualified pediatric patients and 1:1 customized support, can help you find answers about the underlying cause of your child’s epilepsy.
Presenters: Elizabeth Rountree, COO and co-founder of AmbitCare & Neha Kumar, genetic counselor and advisor at AmbitCare
This session provided equipment recommendations, techniques, and activity ideas to facilitate greater participation in community-based activities such as parks, pools, gyms, etc. for those living with epilepsy. Join us as we address common safety concerns as well as ways to advocate for your needs within your communities to maximize participation and independence!
Presenter: Lindsay DeLong, OTR/L, Founder of EquipMeOT, LLC
This session focused on different seizure alert watches, devices, and apps. We will also discuss the role of service dogs. Our speaker, Sarah Tefft, has worked at Children’s Hospital of Philadelphia for the past 8 years with the past two as a nurse practitioner. She is an active volunteer with EFEPA. After Sarah, listen to Monica Staehle, a community member, spoke about her experience with the Embrace watch.
Presenters: Sarah Tefft, CRNP, CPNP-PC and Monica Staehle
In this presentation, Carinna Scotti-Degnan, PhD, Caitlin Trainor, CCLS, Alexandra Bullock, LCSW, and Jillyan Lynch, MSW review how to help you and your child prepare for epilepsy surgery. They focus on how to discuss epilepsy surgery in a developmentally appropriate way and the role of a pediatric psychologist, child life specialist, and social worker in supporting the entire family throughout this process. Their goal is for families to know how and when to access members of the behavioral health team.
How to Choose a Neurosurgeon: Pediatric Surgery Webinar Series
Learn from Dr. Kennedy, MD, FAANS and Kathleen Galligan, PA-C about how to find a neurosurgeon and navigate second opinions. They focus on what information to look for, questions to ask, and how to feel comfortable and confident in your decision. Their goal is for families to feel empowered as advocates for their child and in taking the next steps when medications are not enough.
La Epilepsia y Tú
Dr. Ignacio Valencia, St. Christopher’s Hospital for Children, Departamento de Neurología
Ven y aprende sobre la epilepsia y las crisis epilepticas en niños
Temas: Aspectos básicos de la epilepsia Medidas de seguridad en la casa y en tu comunidad
When Epilepsy Medications Aren’t Enough: Pediatric Surgery Webinar Series
Learn from Dr. Sudha Kessler about an overview of epilepsy treatment options when standard antiseizure medications are not controlling seizures, with a focus on surgical treatments. She explains what to expect from the evaluation process, what types of surgeries children have for epilepsy and why, and how to talk with your neurologist about these treatment options.
Psychogenic Nonepileptic Seizures
Learn from Dr. Lindsay Higdon about Psychogenic Nonepileptic Seizures.
How Doctors Choose your Epilepsy Medications
Learn from Dr. Christopher Skidmore how doctors select the most appropriate medications to control your seizures. Epilepsy can be treated successfully with antiepileptic medications; but clinicians must evaluate every person with epilepsy carefully, keeping in mind individual factors, medications benefits and risks.
How to Break Through Anxiety by Recharging Effectively with Brain.fm
Learn from Chandler Perog, COO of Brain.fm, about strategies to improve performance and mental wellness with Brain.fm music technology.
Drug-Resistant Epilepsy: What you need to know about invasive diagnostic testing
Learn why invasive diagnostic tests are key elements for the diagnosis and treatment of uncontrolled epilepsy. Presented by Dr. Ashwini Sharan and Dr. Christopher Skidmore.
Advanced Treatment Options for Drug-Resistant Epilepsy
Learn about advances in neurostimulation from Dr. Ashwini Sharan, Dr. Christopher Skidmore, and a patient who has benefited from the RNS System.
Introducing the Transition Social Group Program
Learn about a new virtual Transition Social Group Program presented by our partners at The Next Steps Program. What is the Transition Social Group Program? It’s a virtual social group designed for individuals with disabilities, going through the process of transitioning out of high school into independent living or into vocational environments. A place to share experiences, learn new concepts, and to have fun. Targeted participants are 14-26-year-olds diagnosed with a disability.
Navigating Special Education During Covid-19: What Families Need to Know
Presenter Angela Uliana-Murphy discusses Special Education/IEPs and how to ensure your child has access to the same learning opportunities and services as peers as outlined in the IEP.