Request Training

If you would like to schedule a seizure recognition and first aid training for your school/family/organization/business, please contact us at [email protected] and/or 215-629-5003. Please note, all training programs are NOT recorded for later viewing. All our school personnel trainings, educational conferences, and educational webinars provide Act 48 credits.

School Training Flyer

Winter Trainings & Webinars

 


Seizure Recognition & First Aid Training for First Responders

Date & Time: Tuesday, January 23, 2024, from 5:30-7 pm

Presenter: Ellen Baca, Lehigh Valley Resource Coordinator

Registration: https://us02web.zoom.us/webinar/register/WN_kN9V1ezCQcaBLW5YQDR0Yg#/registration

Description: This training will teach emergency personnel how to recognize the signs and symptoms of various seizure types, the administration of proper seizure  first aid, ways in which to handle epilepsy-related events, latest treatments and devices, and the unique needs of people living with epilepsy. This training is approved for NJ and PA CEUs. Those who need CEUs will be entered into the class in the EMS registry by the EFEPA. A certificate of completion and epilepsy resources will be emailed after the training.

For questions about CEUs, please contact Rena Loughlin at [email protected]

For questions about the training, please contact Ellen Baca at [email protected].


Webinar: Meet a Fellow Epilepsy Warrior

Date & Time: Meet Paul & Colleen: Tuesday, January 30 from 6-7pm. Meet DeJah: Wednesday, January 31 from 6-7pm

Description: Learn about living with epilepsy and episodes of frequent seizures. Listen to someone living with seizures and how they manage their unpredictability. Learn more about living with epilepsy and cluster seizures. Join the discussion!

Register: Meet Paul & Colleen, Jan 30: http://tinyurl.com/meetPaulandColleen Meet DeJah, Jan 31: http://tinyurl.com/MeetDeJah

For questions, contact Rena Loughlin at [email protected] or 215-779-8828


Epilepsy in School: Training for School Nurses

Date & Time: Tuesday, February 13, 2024 from 5:30-7 pm

Presenter: Kerri Michnya, Lancaster Resource Coordinator

Registration: https://us02web.zoom.us/webinar/register/WN_MM-nbboFS1yBRZSXk_9zKA 

Description: This training will acquaint school nurses with new seizure classifications, seizure first-aid, and latest treatments and devices to allow them a better understanding of epilepsy and implications of care. The training will also present the social, psychological, and cognitive impacts that epilepsy may have for a student. There will be time at the end for an interactive Q&A. A certificate of completion and epilepsy resources will be emailed after the training. Act 48 credits given.

For questions about the training, please contact Kerri Michnya at [email protected]


Epilepsy in School: Training for Teachers and School Personnel

Date & Time: Tuesday, February 20, 2024 from 5:30-6:30 pm

Presenter: Ellen Baca, Lehigh Valley Resource Coordinator

Registration: https://us02web.zoom.us/webinar/register/WN_UqGPir1zS1iL-MAzrW3aDg 

Description: The training will acquaint school staff with new seizure classifications, seizure first-aid, and latest treatments and devices to allow them a better understanding of epilepsy and implications for care. The training will also present the social, psychological, and cognitive impacts that epilepsy may have for a student. There will be time at the end for an interactive Q&A. A certificate of completion and epilepsy resources will be emailed after the training. Act 48 credits given.

For questions about the training, please contact Ellen Baca at [email protected]


Educational Webinar: Optimizing Wellness: Dietary Strategies for Adults Living with Epilepsy

Date & Time: Wednesday, February 21, 2024, from 5:30-6:30 pm.

Registration: https://us02web.zoom.us/webinar/register/WN_UN94O6N7SEa_wPL-nxQ25g#/registration

Description: Nicole Stawicki, Registered Dietitian at the Northeast Regional Epilepsy Group, will explore a range of dietary interventions tailored to enhance the quality of life for adults living with epilepsy. Beyond the Modified Atkins Diet, Nicole will delve into various proven and impactful dietary approaches that have shown promise in managing and  reducing seizures.

 

For questions, contact Ellen at [email protected] or (610) 737-0613


Webinar: Special Journey Solutions: Navigating Key Options for Families with Special Needs

Date & Time: March 7, April 4, May 2, June 6, September 5, October 3, November 7, from 7-8 pm

Registration: https://us02web.zoom.us/webinar/register/WN_wrNPrAscTCe3eoPELqfewA#/registration

Description: Join us each week as we learn to navigate special needs planning with financial planning experts Bruce Sham and Susan Walter and various guests. This series will address legal documents, taxes, government benefits, difficult decisions and conversations, sources and uses of funding/money, planning for  future financial health, and transitions into adulthood and retirement.

For questions, contact Rena Loughlin at [email protected] or (215) 779-8828.


Past Webinars

To view past educational webinars, please visit our YouTube channel at: www.youtube.com/@EpilepsyFoundationPA.

Diagnóstico de Epilepsia, Primera Consulta Webinar Virtual

Fecha y hora: miércoles 12 de abril, de 6 a 7 p. m.

Grabacion: https://itsyourepilepsy.com/es/diagnostico-de-epilepsia-primera-consulta/

Presentador: Sebastian Ortiz De la Rosa, MD.

Descripción: Este seminario web discutirá cómo comprender mejor la importancia de características de las personas con epilepsia, aspectos a tener en cuenta durante el diagnóstico, y más.


Advances in Surgical Options for Epilepsy Webinar

Date & Time: Tuesday, April 18, 2023, from 7-8pm

Recording: https://youtu.be/oFhTRU7Oayc

Description: Dr. Michael Sather of Penn State Health will present the latest surgical treatments available for people living with epilepsy. Surgical options discussed will include focal resection, laser ablation, and the VNS, RNS and DBS neurostimulation devices.

*Act 48 approved for PA educators and nurses

For questions about the webinar, please contact Ellen Baca at [email protected].


Celebrating Diversity in Women’s Health and Epilepsy: Hormonal Wellness & Empowerment Conference

Date & Time: Saturday, April 22, 2023 from 10 am – 1 pm

Location: The Towne Hall at Towne House, Media, PA.

Recording: https://youtu.be/Bq-bOKyf858

Description: Join the EFEPA on Saturday, April 22nd, from 10:00 am to 1:00 pm for a Brunch & Learn on Hormonal Wellness & Empowerment! Celebrate all forms of womanhood and living our best lives with epilepsy while enjoying a delicious brunch spread, good company, and great learning opportunities!

For questions about the training please contact Rena Loughlin at [email protected].


How AmbitCare’s free genetic counseling can help you find answers about the underlying cause of your child’s epilepsy

5/17/22

Learn from EFEPA and AmbitCare about how there may be a genetic cause of your child’s seizures and developmental delays and how AmbitCare’s free resources, including free virtual genetic counseling for qualified pediatric patients and 1:1 customized support, can help you find answers about the underlying cause of your child’s epilepsy.

Presenters: Elizabeth Rountree, COO and co-founder of AmbitCare & Neha Kumar, genetic counselor and advisor at AmbitCare

For additional info on AmbitCare please check out: https://www.ambitcare.com/registration-efepa


 

 

Living an Active Lifestyle- Maximizing Community Access and Participation

Organized by EFEPA, ItsYourEpilepsy.com, the Brain Recovery Project, and EquipMeOT

5/9/22

This session provided equipment recommendations, techniques, and activity ideas to facilitate greater participation in community-based activities such as parks, pools, gyms, etc. for those living with epilepsy. Join us as we address common safety concerns as well as ways to advocate for your needs within your communities to maximize participation and independence!

Presenter: Lindsay DeLong, OTR/L, Founder of EquipMeOT, LLC

(To view additional content from Lindsay visit EquipMeOT.com and YouTube.com/c/equipmeot)

Key Takeaways Handout HERE!


 

 

Seizure Detection & Alarms: Webinar Series on Safety Devices for Epilepsy

Organized by EFEPA, ItsYourEpilepsy.com, the Brain Recovery Project, and EquipMeOT

4/13/22

This session focused on different seizure alert watches, devices, and apps. We will also discuss the role of service dogs. Our speaker, Sarah Tefft, has worked at Children’s Hospital of Philadelphia for the past 8 years with the past two as a nurse practitioner. She is an active volunteer with EFEPA. After Sarah, listen to Monica Staehle, a community member, spoke about her experience with the Embrace watch.

Presenters: Sarah Tefft, CRNP, CPNP-PC and Monica Staehle

Key Takeaways Handout Here!


 

 

Transition Workshop Series 2022

Workshop 3: Employment & Vocational Training, Tuesday, April 12, 2022

Title: Employment Rights & Accommodations

Speaker: Mark Natale, Attorney at Malamut & Associates

Title: Vocational Training Services from Office of Vocational Rehabilitation

Speaker: Jamie Luthy, Vocational Rehabilitation Counselor at the Office of Vocational Rehabilitation in Philadelphia


 

 

Workshop 2: Higher Education, Tuesday, April 5, 2022

Title: Transition: High School to Post-Secondary Education and Training

Speaker: Dr. Domenico Cavaiulo, Professor in the Dept. of Special Education and Rehabilitation at East Stroudsburg University

Title: Panel for Higher Education

Speakers: Seamus Hanrahan, Erin Seiler, Matt Steele, and Dana Pirolli (Young adults diagnosed with epilepsy share their experiences in higher education and life after highschool and college)


 

 

Workshop 1: Medical & Healthcare Transitions, Saturday, April 2, 2022

Title: Transition- Are you ready?

Speaker: Dr. Lawrence E. Fried, Attending Physician, Division of Neurology, Pediatric Regional Epilepsy Program, Children’s Hospital of Philadelphia

Title: Growing up with Epilepsy

Speaker: Dr. Akila Venkataraman, Pediatric Neurologist, Geisinger Medical Center

Thank you to the Transition Workshop Series Sponsor, UCB, whose generous support made these workshops, and so many of our programs and services throughout the year, possible!


 

 

Maximizing Safety and Independence at Home: Webinar Series on Safety Devices for Epilepsy

Organized by EFEPA, ItsYourEpilepsy.com, the Brain Recovery Project, and EquipMeOT

3/14/22

This session focused on the home and included techniques and tools for improving sleep, bathing, toileting, dressing, kitchen activities and so much more!

Presenter: Lindsay DeLong, OTR/L, Founder of EquipMeOT, LLC

(To view additional content from Lindsay visit EquipMeOT.com and YouTube.com/c/equipmeot)

Key TakeAways & Resources HERE!


 

 

Seizure Recognition & First Aid Training for Caregivers & the General Public

1/27/22 Presenter: Ellen Baca, Lehigh Valley Resource Coordinator


 

 

Family Experience: Pediatric Surgery Webinar Series

Brought to you by EFEPA & ItsYourEpilepsy.com

11/29/21

In this session you will hear testimonials of two families who have gone through the pediatric epilepsy surgery journey.


 

 

Preparing for Epilepsy Surgery: Pediatric Surgery Webinar Series

Brought to you by EFEPA & ItsYourEpilepsy.com

11/15/21: TakeAways Handout

In this presentation, Carinna Scotti-Degnan, PhD, Caitlin Trainor, CCLS, Alexandra Bullock, LCSW, and Jillyan Lynch, MSW review how to help you and your child prepare for epilepsy surgery. They focus on how to discuss epilepsy surgery in a developmentally appropriate way and the role of a pediatric psychologist, child life specialist, and social worker in supporting the entire family throughout this process. Their goal is for families to know how and when to access members of the behavioral health team.


 

 

How to Choose a Neurosurgeon: Pediatric Surgery Webinar Series

Brought to you by EFEPA & ItsYourEpilepsy.com

11/9/21: TakeAways Handout

Learn from Dr. Kennedy, MD, FAANS and Kathleen Galligan, PA-C about how to find a neurosurgeon and navigate second opinions. They focus on what information to look for, questions to ask, and how to feel comfortable and confident in your decision. Their goal is for families to feel empowered as advocates for their child and in taking the next steps when medications are not enough.


 

 

La Epilepsia y Tú

11/2/21

Dr. Ignacio Valencia, St. Christopher’s Hospital for Children, Departamento de Neurología

Ven y aprende sobre la epilepsia y las crisis epilepticas en niños

Temas:
Aspectos básicos de la epilepsia
Medidas de seguridad en la casa y en tu comunidad


 

 

When Epilepsy Medications Aren’t Enough: Pediatric Surgery Webinar Series

Brought to you by EFEPA & ItsYourEpilepsy.com

11/1/21- TakeAways Handout

Learn from Dr. Sudha Kessler about an overview of epilepsy treatment options when standard antiseizure medications are not controlling seizures, with a focus on surgical treatments. She explains what to expect from the evaluation process, what types of surgeries children have for epilepsy and why, and how to talk with your neurologist about these treatment options.


 

 

Psychogenic Nonepileptic Seizures

10/7/21

Learn from Dr. Lindsay Higdon about Psychogenic Nonepileptic Seizures.


 

 

How Doctors Choose your Epilepsy Medications

9/20/21

Learn from Dr. Christopher Skidmore how doctors select the most appropriate medications to control your seizures. Epilepsy can be treated successfully with antiepileptic medications; but clinicians must evaluate every person with epilepsy carefully, keeping in mind individual factors, medications benefits and risks.


 

 

How to Break Through Anxiety by Recharging Effectively with Brain.fm

6/28/21

Learn from Chandler Perog, COO of Brain.fm, about strategies to improve performance and mental wellness with Brain.fm music technology.


 

 

Drug-Resistant Epilepsy: What you need to know about invasive diagnostic testing

6/21/21

Learn why invasive diagnostic tests are key elements for the diagnosis and treatment of uncontrolled epilepsy. Presented by Dr. Ashwini Sharan and Dr. Christopher Skidmore.


 

 

Seizure Clusters: Unmet Needs & Emerging Formulations

4/28/21

Learn about seizure clusters, seizure cluster management, seizure action plans, and rescue medication options presented by Chris Dietrich, Medical Liason at Aquestive Therapeutics.


 

 

Epilepsy Care & Vaccines During the Pandemic

4/8/21

Learn about epilepsy care during the pandemic and vaccine safety presented by Dr. Brian Hanrahan, Epileptologist at St. Luke’s Neurology.


 

 

International Epilepsy Day

2/8/21

Take a trip around the world with with Dr. Joyce Liporace and Tony Coelho to learn about the impact epilepsy has globally.

Special thanks to our Sponsors: Eisai, Greenwich Biosciences, UCB


 

 

Advanced Treatment Options for Drug-Resistant Epilepsy

1/18/21

Learn about advances in neurostimulation from Dr. Ashwini Sharan, Dr. Christopher Skidmore, and a patient who has benefited from the RNS System.


 

 

Introducing the Transition Social Group Program

12/2/20

Learn about a new virtual Transition Social Group Program presented by our partners at The Next Steps Program. What is the Transition Social Group Program? It’s a virtual social group designed for individuals with disabilities, going through the process of transitioning out of high school into independent living or into vocational environments. A place to share experiences, learn new concepts, and to have fun. Targeted participants are 14-26-year-olds diagnosed with a disability.


 

 

Navigating Special Education During Covid-19: What Families Need to Know

8/26/20

Presenter Angela Uliana-Murphy discusses Special Education/IEPs and how to ensure your child has access to the same learning opportunities and services as peers as outlined in the IEP.