Upcoming Webinars & Trainings
If you would like to schedule a seizure recognition and first aid training please contact Rena Loughlin at rloughlin@efepa.org and/or 215-629-5003 ext. 101 and/or 215-779-8828.
**All trainings are NOT recorded for later viewing.
**All our school personnel trainings, educational conferences, and educational webinars
provide Act 48 credits.
Special Thank You to Our Webinar Series Presenting Sponsor:
***If you would like to set up a specific training with us for your school/family/organization/business please contact Rena Loughlin at rloughlin@efepa.org or 215-779-8828! We are happy to set one up for you!
How AmbitCare’s free genetic counseling can help you find answers about the underlying cause of your child’s epilepsy
Webinar
May 17, 2022 from 5:30-6:30pm
Join EFEPA and AmbitCare to learn about how there may be a genetic cause of your child’s seizures and developmental delays and how AmbitCare’s free resources, including free virtual genetic counseling for qualified pediatric patients and 1:1 customized support, can help you find answers about the underlying cause of your child’s epilepsy.
For additional info on AmbitCare please check out: https://www.ambitcare.com/registration-efepa
PA Educators and School Nurses eligible for ACT 48 Credits.
Epilepsy in School: Training for School Nurses
Date & Time: Thursday, May 26, 2022 from 5:30-7pm
Presenter: Kerri Michnya, Lancaster & Berks Resource Coordinator
Registration: https://us02web.zoom.us/webinar/register/WN_pow6jXhXRWuodeiu10HhHQ
Description: This training will acquaint school nurses with new seizure classifications, seizure first-aid, and latest treatments and devices to allow them a better understanding of epilepsy and implications for care. The training will also present the social, psychological, and cognitive impacts that epilepsy may have for a student. There will be time at the end for an interactive Q&A. A certificate of completion and epilepsy resources will be emailed after the training. Act 48 credits given. For questions about the training please contact Kerri Michnya at kmichnya@efepa.org.
Past Trainings & Webinars
Living an Active Lifestyle- Maximizing Community Access and Participation
Organized by EFEPA, ItsYourEpilepsy.com, the Brain Recovery Project, and EquipMeOT
5/9/22
This session provided equipment recommendations, techniques, and activity ideas to facilitate greater participation in community-based activities such as parks, pools, gyms, etc. for those living with epilepsy. Join us as we address common safety concerns as well as ways to advocate for your needs within your communities to maximize participation and independence!
Presenter: Lindsay DeLong, OTR/L, Founder of EquipMeOT, LLC
(To view additional content from Lindsay visit EquipMeOT.com and YouTube.com/c/equipmeot)
Seizure Detection & Alarms: Webinar Series on Safety Devices for Epilepsy
Organized by EFEPA, ItsYourEpilepsy.com, the Brain Recovery Project, and EquipMeOT
4/13/22
This session focused on different seizure alert watches, devices, and apps. We will also discuss the role of service dogs. Our speaker, Sarah Tefft, has worked at Children’s Hospital of Philadelphia for the past 8 years with the past two as a nurse practitioner. She is an active volunteer with EFEPA. After Sarah, listen to Monica Staehle, a community member, spoke about her experience with the Embrace watch.
Presenters: Sarah Tefft, CRNP, CPNP-PC and Monica Staehle
Transition Workshop Series 2022
Workshop 3: Employment & Vocational Training, Tuesday, April 12, 2022
Title: Employment Rights & Accommodations
Speaker: Mark Natale, Attorney at Malamut & Associates
Title: Vocational Training Services from Office of Vocational Rehabilitation
Speaker: Jamie Luthy, Vocational Rehabilitation Counselor at the Office of Vocational Rehabilitation in Philadelphia
Workshop 2: Higher Education, Tuesday, April 5, 2022
Title: Transition: High School to Post-Secondary Education and Training
Speaker: Dr. Domenico Cavaiulo, Professor in the Dept. of Special Education and Rehabilitation at East Stroudsburg University
Title: Panel for Higher Education
Speakers: Seamus Hanrahan, Erin Seiler, Matt Steele, and Dana Pirolli (Young adults diagnosed with epilepsy share their experiences in higher education and life after highschool and college)
Workshop 1: Medical & Healthcare Transitions, Saturday, April 2, 2022
Title: Transition- Are you ready?
Speaker: Dr. Lawrence E. Fried, Attending Physician, Division of Neurology, Pediatric Regional Epilepsy Program, Children’s Hospital of Philadelphia
Title: Growing up with Epilepsy
Speaker: Dr. Akila Venkataraman, Pediatric Neurologist, Geisinger Medical Center
Thank you to the Transition Workshop Series Sponsor, UCB, whose generous support made these workshops, and so many of our programs and services throughout the year, possible!
Maximizing Safety and Independence at Home: Webinar Series on Safety Devices for Epilepsy
Organized by EFEPA, ItsYourEpilepsy.com, the Brain Recovery Project, and EquipMeOT
3/14/22
This session focused on the home and included techniques and tools for improving sleep, bathing, toileting, dressing, kitchen activities and so much more!
Presenter: Lindsay DeLong, OTR/L, Founder of EquipMeOT, LLC
(To view additional content from Lindsay visit EquipMeOT.com and YouTube.com/c/equipmeot)
Key TakeAways & Resources HERE!
Seizure Recognition & First Aid Training for Caregivers & the General Public
1/27/22 Presenter: Ellen Baca, Lehigh Valley Resource Coordinator
Family Experience: Pediatric Surgery Webinar Series
Brought to you by EFEPA & ItsYourEpilepsy.com
11/29/21
In this session you will hear testimonials of two families who have gone through the pediatric epilepsy surgery journey.
Preparing for Epilepsy Surgery: Pediatric Surgery Webinar Series
Brought to you by EFEPA & ItsYourEpilepsy.com
11/15/21: TakeAways Handout
In this presentation, Carinna Scotti-Degnan, PhD, Caitlin Trainor, CCLS, Alexandra Bullock, LCSW, and Jillyan Lynch, MSW review how to help you and your child prepare for epilepsy surgery. They focus on how to discuss epilepsy surgery in a developmentally appropriate way and the role of a pediatric psychologist, child life specialist, and social worker in supporting the entire family throughout this process. Their goal is for families to know how and when to access members of the behavioral health team.
How to Choose a Neurosurgeon: Pediatric Surgery Webinar Series
Brought to you by EFEPA & ItsYourEpilepsy.com
11/9/21: TakeAways Handout
Learn from Dr. Kennedy, MD, FAANS and Kathleen Galligan, PA-C about how to find a neurosurgeon and navigate second opinions. They focus on what information to look for, questions to ask, and how to feel comfortable and confident in your decision. Their goal is for families to feel empowered as advocates for their child and in taking the next steps when medications are not enough.
La Epilepsia y Tú
11/2/21
Dr. Ignacio Valencia, St. Christopher’s Hospital for Children, Departamento de Neurología
Ven y aprende sobre la epilepsia y las crisis epilepticas en niños
Temas:
Aspectos básicos de la epilepsia
Medidas de seguridad en la casa y en tu comunidad
When Epilepsy Medications Aren’t Enough: Pediatric Surgery Webinar Series
Brought to you by EFEPA & ItsYourEpilepsy.com
11/1/21- TakeAways Handout
Learn from Dr. Sudha Kessler about an overview of epilepsy treatment options when standard antiseizure medications are not controlling seizures, with a focus on surgical treatments. She explains what to expect from the evaluation process, what types of surgeries children have for epilepsy and why, and how to talk with your neurologist about these treatment options.
Psychogenic Nonepileptic Seizures
10/7/21
Learn from Dr. Lindsay Higdon about Psychogenic Nonepileptic Seizures.
How Doctors Choose your Epilepsy Medications
9/20/21
Learn from Dr. Christopher Skidmore how doctors select the most appropriate medications to control your seizures. Epilepsy can be treated successfully with antiepileptic medications; but clinicians must evaluate every person with epilepsy carefully, keeping in mind individual factors, medications benefits and risks.
How to Break Through Anxiety by Recharging Effectively with Brain.fm
6/28/21
Learn from Chandler Perog, COO of Brain.fm, about strategies to improve performance and mental wellness with Brain.fm music technology.
Drug-Resistant Epilepsy: What you need to know about invasive diagnostic testing
6/21/21
Learn why invasive diagnostic tests are key elements for the diagnosis and treatment of uncontrolled epilepsy. Presented by Dr. Ashwini Sharan and Dr. Christopher Skidmore.
Seizure Clusters: Unmet Needs & Emerging Formulations
4/28/21
Learn about seizure clusters, seizure cluster management, seizure action plans, and rescue medication options presented by Chris Dietrich, Medical Liason at Aquestive Therapeutics.
Epilepsy Care & Vaccines During the Pandemic
4/8/21
Learn about epilepsy care during the pandemic and vaccine safety presented by Dr. Brian Hanrahan, Epileptologist at St. Luke’s Neurology.
International Epilepsy Day
2/8/21
Take a trip around the world with with Dr. Joyce Liporace and Tony Coelho to learn about the impact epilepsy has globally.
Special thanks to our Sponsors: Eisai, Greenwich Biosciences, UCB
Advanced Treatment Options for Drug-Resistant Epilepsy
1/18/21
Learn about advances in neurostimulation from Dr. Ashwini Sharan, Dr. Christopher Skidmore, and a patient who has benefited from the RNS System.
Introducing the Transition Social Group Program
12/2/20
Learn about a new virtual Transition Social Group Program presented by our partners at The Next Steps Program. What is the Transition Social Group Program? It’s a virtual social group designed for individuals with disabilities, going through the process of transitioning out of high school into independent living or into vocational environments. A place to share experiences, learn new concepts, and to have fun. Targeted participants are 14-26-year-olds diagnosed with a disability.
Navigating Special Education During Covid-19: What Families Need to Know
8/26/20
Presenter Angela Uliana-Murphy discusses Special Education/IEPs and how to ensure your child has access to the same learning opportunities and services as peers as outlined in the IEP.