Conferences and Educational Workshops

Conferences and Educational Workshops 2019-07-16T17:24:47-04:00

About the Education Exchanges

The Epilepsy Education Exchanges are yearly programs held in the Berks, Lancaster, Lehigh Valley, Philadelphia and Wilkes-Barre regions. Participants include those living with epilepsy, family members and caregivers, medical and healthcare professionals, and school personnel.

Topics are related to epilepsy treatments and updates, psychological, emotional and social concerns, clinical trials, employment and school issues, as well as other challenges that those with epilepsy/seizure disorder share.

These conferences are free and open to the public. Travel reimbursement to programs available upon request. Email efepa@efepa.org for more information!

Special thanks to our 2018 Conference Series Sponsors:

Fall Conferences

Spring Conferences

Epilepsy Education Exchange

The Epilepsy Education Exchange is our annual conference held in the greater Philadelphia area. The 2018 program was held on October 27th at the Delaware County Intermediate Unit in Morton, PA.

Dr. Mercedes Jacobson of Temple Comprehensive Epilepsy Center provided the keynote presentation on Living your Best Life with Epilepsy. Workshops included Research & Clinical Trials by Dr. Michael Gelfand of Penn Epilepsy Center, Navigating Insurance by Jason Moyer of UCB Pharmaceuticals, Self-Care Management for People with Epilepsy and Caregivers by Caitlin Rice, MSW, LSW of the Council for Relationships, and a panel on Preparing for and Navigating Transition with Bethany Thomas, CRNP, MSN of Penn Epilepsy Center, Sarah Hardacker, MSN, RN of Children’s Hospital of Philadelphia, Josh Green, Temple University Student, and Natalie Nelson, Moore College of Art Student.

To read a full recap of the event, click here!

For more information, contact us at 215-629-5003 or efepa@efepa.org.

Video from the 2017 sessions:

Northeast Epilepsy Education Exchange

The 2018 Conference was held on October 24th at the John Heinz Insitute in Wilkes-Barre, PA. Our community joined us to hear from an epilepsy specialist from Geisinger Health Center along with a panel discussion on Navigating Local Support Services with representatives from the Office of Vocational Rehabilitation, Anthracite Center for Independent Living and NEPA Inclusive.

For more information, contact us at 570-592-1150 or epilepsywv@efepa.org.

Spring Conferences

Lehigh Valley Epilepsy Education Exchange

The Lehigh Valley Epilepsy Conference was held on on May 14, 2019 at the Holiday Inn I-78 in Breinigsville, PA. Registration and vendor tables opened at 5:15 pm and the conference began at 6:00 pm. Light dinner was served.

Parents, children ages 10+ were invited to join you for the 2019 Epilepsy Education Exchange. We had a special activity room for socializing, games and dinner with supervision from EFEPA staff and volunteers. This was a great opportunity for youth with epilepsy and their siblings to get more involved with the EFEPA! Please RSVP with number of children and ages to Ellen Baca at lv@efepa.org or 610-737-0613.

The 2019 conference featured Sarah Tefft, BSN, RN at Children’s Hospital of Philadelphia speaking on Seizure Tracking and Management: Using your Smart Phone and Other Technologies to Improve Epilepsy Management and Jessica Roland, PhD, CMPP, Medical Science Liaison at Greenwich Biosciences speaking on Medical Cannabis and Epilepsy.

You can also visit www.epilepsyinthevalley.org to get started. For more information about the program, contact Ellen Baca, Lehigh Valley Coordinator at lv@efepa.org or 610-737-0613.

The 2018 conference featured Dr. Scott Kohler of St. Luke’s Neurology Associates who spoke on Treatments & Technology: What’s New in Epilepsy and Jessie Meier, LSW, MSW of Lehigh Valley Health Network who discussed Tips for Successful Health Care Advocacy.

2016 Conference:

Lancaster Epilepsy Education Exchange

The 2019 Lancaster Epilepsy Conference was held on on May 21, 2019 at the Lancaster County Public Safety Training Center.

The 2019 conference featured Claire Flaherty, PhD, Neuropsychologist, Penn State Hershey Medical Center speaking on The Brain and Cognitive Health: What you can do to improve cognitive function as an add-on therapy and Heather D. Harle, MD, Neurologist, Penn Medicine at Lancaster General Health Physicians speaking on Cannabinoids and Medical Marijuana: What’s the difference and how are they used to treat epilepsy?

For more information about the program, contact Kerri Michnya, Lancaster Resource Coordinator at kmichnya@efepa.org or (717) 449-1872

The 2018 conference featured Dr. Dennis Dlugos of Children’s Hospital of Philadelphia who spoke on Epilepsy 101: New seizure classifications, testing, and treatment pathways and Barbara Beck, CRNP, EFEPA Professional Advisory Board who discussed Tips for Successful Health Care Advocacy: Preparing for your doctor’s visits, improving your self-management skills, seizure tracking tools and more.

La Epilepsia Y Tú: Spanish-language Epilepsy Exchange

Es un placer ofrecer una conferencia dedicada a los hispanohablantes con epilepsia. Reune con nosotros el 4 de Abril 2018 en el Hospital de Lehigh Valley. Dra. Soraya Jimenez presentará sobre la epilepsia y las crisis epilépticas. Ademas discutiremos temas como seguridad en la casa y en la comunidad y sugerencias de manejar una vida productiva y independiente.

Para más información, contacta Elizabeth Beil a ebeil@efepa.org o 215-629-5003 x104.

Women and Epilepsy Conference

This program is offered every other year in the spring to focus on the unique and special concerns related to epilepsy/seizure disorder that are gender specific. In some years the conference focuses specifically on women’s issues and in others there are sessions for women and men running concurrently.

2019 conference topics included: Women and Hormones with Lindsay Higdon, MD; Pregnancy & Childcare with Danielle Becker, MD; Strong Women with Joyce Liporace, MD and Living Our Best with Jaime Spinell Zuckerman, PsyD.

Past conference topics have included: Genetics and EpilepsyLiving with Epilepsy; Talking to your Doctor; Hormones: Puberty to Menopause; Pregnancy and Epilepsy; Medication Side Effects and Men’s Health.

Joyce Liporace, MD of Great Valley Neurological Associates, has been the chairperson for the Women’s Conference since it’s inception in 1999. Michael Sperling, MD, Director of the Jefferson Comprehensive Epilepsy Center, Thomas Jefferson University Hospital, was the chairperson of the first Men’s Conference in 2010.

Dr. Liporace’s session on Pregnancy & Epilepsy:

Speakers for all EFEPA conferences are well-known professionals in their field.

Visit our Professional Advisory Board and Board of Directors to view some, but not all, of our conference faculty.

The Foundation is not affiliated with any hospital in its services area. Presenters are chosen by their expertise of the subject matter. The Foundation is not funded by the pharmaceutical industry and is an independently incorporated affiliate of the Epilepsy Foundation of America, Landover, MD, (800) 332-1000. A copy of the official registration and financial information may be obtained from the PA Department of State by calling toll free (800) 732-0999. Registration does not imply endorsement.